More Information

What is the Patient Engagement Research Council?

The Patient Engagement Research Council is a group of individuals with a common diagnosis coming together to share their experiences and insights to better inform the work that Janssen does to help people.

Who can participate in the Patient Engagement Research Council?

US citizens and legal US residents may be invited to join the Patient Engagement Research Council at the sole discretion of the sponsor, Janssen.

What will be expected of me in the Patient Engagement Research Council?

If you are asked to become a member of the Patient Engagement Research Council, we will invite you to join various activities. These will mostly be conducted online or via telephone such as conference calls, one-on-one interviews, video calls, focus groups, etc. We may occasionally host an in-person meeting. We hope that you will choose to participate in at least one activity. Online and phone activities may last between 1-2 hours. In-person meetings may last up to a full day.

What time commitment is required?

If you join the Patient Engagement Research Council, we ask that you make a one–year commitment. Over the course of that year, you may be invited to participate in as many as six activities. We ask that you participate in at least one activity.

Will I be paid for my time?

Yes, you will be compensated for your time.

May I share my experiences participating in the Patient Engagement Research Council with others?

No. You will be asked to sign a confidentiality and non-disclosure agreement. In turn, we will respect your privacy in compliance with HIPAA and other regulations.

How many individuals will be enrolled in the Patient Engagement Research Council?

The Council will be made up of about ten to twelve individuals per medical condition.